Multiple Sclerosis is a lifetime of challenges.
It demands that no day be taken for granted,
that every accomplishment be seen as significant.
MS can change habits, rearrange priorities, demand
But every day, people with MS prove they are much more
than their disease.
And that a life with MS should be, can be, indeed, is well
I don't wanna be me for a while.
I'm tired of this MonSter called Multiple Sclerosis.
I'm tired of the pain, I'm tired of the fight.
I'm tired of being tired and not sleeping.
If I could just trade with someone for a day.
I'd even trade for a few hours.
I'd like to get the weight off my back.
I'd like to get the weight off my mind.
I could easily trade with one of the many folks
That say "You're looking good!"
On a day you're not feeling good,
It really makes you feel like trading.
Or other well-meaning folks that say
"Gee, you're walking really well today!"
On a day when you're having trouble walking,
It's hard to return the smile and go on.
The casual acquaintances that know you have MS,
But don't know of the battles you've fought.
"You're doing well after all these years!"
When you've been killing dragons for eleven years.
Ah, to just trade places for a day or two, or even an hour.
Just a short rest for me, I wouldn't make them keep it.
I really don't think most folks could take it.
They'd get a rude awakening for a day or so.
And then I'd have to take it back.
But I would have had a little rest.
And I'd be better prepared when MS returned.
It wouldn't just sneak up on me.
~David E. Butschy~
December 28, 2001
I'LL TRADE FOR A WHILE
just to give you some rest.
It's not that I care for pain, but you've had your share.
I just went through a painful period myself,
but feel so much better now, that I'd share
some of this pain-free time.
January 23, 2002
"Hold onto your memories" that's what they say
Well, what do you do when they're all fading away
"Memories last forever" isn't that how it's put
Only problem is, my memory is going ka-put
People say, "At least you have your memories"
I say, "No, cuz I think I forgot where I put the key"
Don't take me wrong, I'm not feeling sorry for myself
It's just that I think I put my memories too high on the shelf
The shelf in this case, is an incurable disease
One that strikes whomever it may please
It doesn't care your religion or the color of your skin
Doesn't even care the financial shape you're in
It doesn't mind if you're rich or poor, it strikes without
Seems to like Iowa, Nebraska or any of the Midwest
It does prefer people between the ages of twenty and forty
Just when life is supposed to be beginning - oh lordy lordy
It strikes at different parts of your brain
No two cases are ever the same
Sometimes I can walk, sometimes I can see
But I want to do both whenever I please
Now, for some reason, it decided to take away
My memories from both my past and recent days
Struggling to think of things I know I have learned
Instead all I get is a blank at each turn
Makes me mad at myself, disgusted it's true
Remembering memories - such a simple thing to do
I don't want pity, just want you to understand
Why sometimes words don't come out just as I had planned
Multiple Sclerosis, MS, this stupid disease
Thinking it can do just as it may please
But my will power is strong - just wait and see
I have MS - It does NOT have me!
an original writing by:
Joanie E. (formerly Jackson) copyrighted 6-27-97
all rights reserved
IF YOU WISH TO USE JOANIE'S POEM, YOU MUST GET WRITTEN PERMISSION, YOU MAY CONTACT HER AT:
When things go wrong, as they sometimes will,
when the road your trudging seems all uphill,
when the funds are low and the debts are high,
and you want to smile, but you have to sigh,
when care is pressing you down a bit -
rest if you must, but don't quit.
Life is queer with its twists and its turns,
as everyone of us sometimes learns,
and many a failure turns about, when
they might have won, had they stuck it out.
Don't give up though the pace seems slow,
You may succeed with another blow.
Often the struggler has given up,
when he might have captured the victors cup;
and he learned too late when the night came down,
how close he was to the golden crown.
Success is failure turned inside out -
The silver tint of the clouds of doubt -
And you never can tell how close you are,
It may be near when it seems so far;
So stick to the fight when your hardest hit,
It's when things seem worst that you mustn't quit!
Music is Aerosmith's, "Sweet Emotion"
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